Follow Your Gut: What's eating my daughter's stomach? (Part 1)

A Mother's Intuition

Ever heard of “mother’s intuition?”  It is that tiny voice in a mom’s head that says “hmm…something is not quite as it seems.”   That voice was what drove my friend  Emily to forgo her pediatrician’s relaxed approach to her young daughter’s stomach pains and embark on journey directed by her mother’s intuition.   Over coffee  at our local java stop, Emily described the events of the past two years to me.

Emily’s daughter, Nicky, who is now 6, began having constipation and separate periods of stomach pain at age 4.  She  was also having difficulty maintaining attention for age appropriate tasks, causing her  parents to discuss attention deficit disorder with their pediatrician.  While the physician leaned more toward treating the symptoms of the gastrointestinal (GI) issues, Emily asked herself why her daughter was in such agony.  What was causing this?  Because Nicky’s paternal grandmother had a history of stomach ailments and found relief via a gluten-free diet, Nicky’s parents suspected a gluten intolerance.  They took her off gluten in January 2011, and within 2 week the stomach aches and constipation went away.   Interestingly, so did her difficulties with attention and her tendency to be impulsive, which is a hallmark for children with ADD.

Over time, Emily did not worry about cross contamination or the occasional gluten-filled cookie.  Her daughter typically preferred to eat gluten-free foods, eating “lots of fruits and veggies, minimally processed foods” and only rarely,  a food with gluten.   By August 2011, Nicky had returned to daily tummy pains and the discomfort of chronic constipation.   Kindergarten had started, and at first, Emily suspected the culprit to be the stress that such a big transition can cause for a child.  But, by the start of 2012, mother’s intuition was shouting “Do something about this!” 

Time to Act

First stop: allergy testing.  A blood test for celiac, not always foolproof, came back negative.  Additional blood tests and scratch tests for food allergies were negative, but further testing revealed that Nicky had the permissive gene marker for celiac.  Consequently, Emily’s next step was to take Nicky to a pediatric gastroenterologist, who ordered a series of tests to rule out a multitude of causes for Nicky’s pain, including stool testing for parasites, an ultrasound of her liver and pancreas and tests for gastroesophageal reflux disease (GERD).   Again, all tests came back negative, leading Emily and her husband to consider taking one more step: an upper GI endoscopy involving anesthesia and a small bowel biopsy.

“What went through your mind when you considered this next step?” I asked my friend.  Emily gazed into her coffee, taking herself back to that moment.  “The risks of anesthesia.  I had the choice to do it or not to do it and that felt very heavy.  Ultimately, we decided to do it because it was important that we knew  for sure if we needed to avoid cross contamination or food temptations.”   Emily’s anguish over Nicky being 100% gluten free for life was clear.  “Mel, I mourned the loss of gluten.  I truly mourned it.”

Join us for Part 2 of “Follow Your Gut.”

In Part 2 of this article,  Emily is instructed to do a “gluten challenge”,  feeding Nicky plenty of gluten for the next 8 weeks prior to the endoscopy to ensure that the biopsy results would be accurate.   While she mourned the loss of gluten, the flood of gluten over the next 2 months proved to be the most challenging aspect of this journey, as little Nicky’s symptoms became almost unbearable for a mother to watch.

 For more information visit:  How to Get Tested for Celiac Disease.

About Melanie

Melanie Potock, MA, CCC-SLPMelanie is speech language pathologist who specializes in feeding.  Her work brings her into the homes and schools of her clients, kids, who for various reasons have difficulty with food or with eating. She works with kids and their parents to develop effective strategies that help children become “more adventurous eaters”.  At least 50% of her clients have food allergies or intolerances, and for them, “adventurous eating” takes on a special meaning.  Melanie is also the author of Happy Mealtimes with Happy Kids” and the executive producer of “Dancing in the Kitchen.”

More Posts from Melanie

Read PART 2:  Going through a Celiac Biopsy

Why Children with Autism are Often Picky Eaters

Review:  The Magic of the BellyFull Kit (From the Hopeful Company)

How Can Parents Feel Less Stress with a Food Allergic Child in School?

Love is In the Air… Valentine Ideas for Your Food Allergic Child

Great ideas from Guest Blogger, Melanie Potock of MyMunchbug.com.

Allergen-free Cookies from Cybele Pascal

Recipe from Cybele Pascal

This weekend,  kitchen tables everywhere will be piled high with home-made Valentine cards or frosted with flour and cookie cut-outs as everyone prepares for the traditional Valentine’s Day Party at school. For kids with food allergies or sensitivities, new ideas for alternative crafts or treats are plenty and I’d love to share some of them here with you!

Let’s get right to it: cookies, that is.  I mean, you have to have a heart shaped cookie on Valentine’s Day…I’m pretty sure there’s a law about that.  When I laid eyes on these delectable allergen-free “melt in your mouth” cookies from Cybele Pascal, I knew I had found the perfect little hearts to share with you. 

Fun Valentine Cards & Activities

MAMAGAGA

Speaking of little hearts, here’s a clever idea for a Valentine’s Day card that is not only from your child’s heart, but direct from his tiny hand!  Mamagaga.com created this easy tutorial where you take a photo of your child with their hand reaching toward the camera and then simply put the token of your choice in his hand as a special Valentine treat!  Allergy free options might include an organic lollypop, a Starbuck’s card (for teacher!) or a one-word, handwritten message in your child’s own lettering, such as “KISS”.

DOTTY VALENTINE

Another option for cards takes a bit more time and definitely adult supervision, but I loved these “dotty valentines” using precision Q-tips™.  The Crafty Crow recommends acrylic or tempura paints (contains egg) but another option would be Allergen Free Non-toxic finger paints either homemade or from  India Tree Natural Decorating Colors , which are made from vegetables.  As always, check ingredients to ensure that your child is safe and consult with kidswithfoodallergies.org for craft supplies that may contain allergens.

DEVELOP MOTOR SKILLS

Continue to challenge your kiddo’s fine motor skills with this lacing activity! Looking for an inexpensive class activity that doesn’t involve scooping up as much sugar and candy as little fists can hold and then piling it all on top of a processed cookie in less than 15 seconds?  This Valentine craft will keep tiny hands busy and the poor teacher won’t have to deal with 25 kids in a sugar coma after the party has ended.

Cupcakes!  GF, DF, Egg-free, Nut-free, Soy-free

Let’s do the teacher, the kids and the other parents a favor and bring in a sweet pink treat that can’t be beat…wait for it…yes, “Beet-iful Cupcakes” by Gluten Free Gigi.  Bright reddish-pink cushions of heaven, thanks to the natural color of a roasted beet!  These are gluten, dairy, egg, soy and nut free, sweetened with honey and delish!

Gifts of Service

What I loved most as I explored all the options for Valentine’s Day, was this post that I felt gave the best examples of how we can express our love, even to those that we have yet to know.  Reach out to an army family, visit a nursing home, bring art supplies for Valentines to your local children’s hospital or write a message to the kids to help them heal... just like someone did here in the freshly fallen snow in Colorado!

It will warm your heart…and theirs.  

"Get Well Kids" written in the snow....

Happy Valentine’s Day Tender Foodies!

About Melanie

Melanie Potock, MA, CCC-SLPMelanie is speech language pathologist who specializes in feeding.  Her work brings her into the homes and schools of her clients, kids, who for various reasons have difficulty with food or with eating. She works with kids and their parents to develop effective strategies that help children become “more adventurous eaters”.  At least 50% of her clients have food allergies or intolerances, and for them, “adventurous eating” takes on a special meaning.  Melanie is also the author of Happy Mealtimes with Happy Kids” and the executive producer of “Dancing in the Kitchen.”

More Posts from Melanie

How Can Parents Feel Less Stress with a Food Allergic Child in School?

Review:  The Magic of the BellyFULL Kit from the Hopeful Company

Review: The Magic of the BellyFULL Kit (from The Hopeful Company)

The Tender Foodie welcomes regular guest blogger, Melanie Potock of My Munch Bug.

The BellyFULL Kit

When the mailman recently delivered a box from The HopeFULL Company, it took a minute to recall what might be inside: “Oh, right” I pondered.  “This must be those funny shaped frozen pop molds from those gals in Minnesota…”  As a feeding therapist, I love to try new products that help kids be more adventurous eaters. Whether I am working with a medically fragile child or a garden variety “picky eater”, I am always thinking of how to make eating fun!

 

But, another frozen treat mold?  Really?  My father always taught me: Never judge a book by its cover.  There had to be more to this.  I opened the box and began to examine what new treasure had arrived that day while discovering how I might use this to help children be more adventurous eaters.  The box contained a complete BellyFULL Kit, which included…

  

1.       An adorable chef’s hat: the essential accessory.  I mean, who doesn’t love a good hat?

 

 It’s adjustable too!  I have a huge head and I suspect the hat is meant for kids, but of course, being 52 going on 5,  I had to try it on.  It didn’t quite fit sitting on my blockbuster noggin, but if you undo the Velcro in the back and slip it on like a pilgrim hat, it’s absolutely fabulous.  

Me in my "Pilgram" hat

 

2.       A silicone mold: if you’ve got kids, you know the absolute delight in anything wiggly and jiggly!

This bright orange flexible mold allows the 8 frozen pops to be well, “popped” out with ease.  In feeding therapy, we know the first step to interacting with new foods is being willing to handle the container.  For many kids, this can be as challenging as spooning out a Brussels sprout from a family serving bowl.  With the BellyFULL mold, the container is so enticing, kids will be eager to handle it, fill it and pop out the nutritious treats.  It’s irresistible!

 

3.       100 Birchwood spoons that your kids get to push into the pop with the bowl of the spoon sticking OUT, like a little handle.  

The spoons are just the right size for little fists and offer just enough of a handle that the pops won’t flip out of their grasp.  Have you ever noticed that a traditional frozen pop stick is just too narrow and too long for little fists to hang on to?  Plus, the curve of the spoon bowl fits nicely with the curve of your child’s thumb, adding extra stability while holding the pop.  Hesitant eaters don’t want their food waving in front of them.  They want to feel secure and stable with it before they put it in their mouths.  

4.       My favorite part: the coated recipe cards (easy clean!) on a ring (brilliant!) with fun, playful graphics that will elicit plenty of belly laughs!  

My favorite card was the recipe for “Applesauce-A-Saurus” pops, with a silly photo of a ferocious dinosaur about to devour an orange tray of frozen pops!

The photos are entertaining conversation starters to help kids decide which recipe they want to make that day.  When you have a hesitant eater, introducing a new food truly begins with something silly, like a dinosaur eating popsicles or putting on a chef’s hat upside down!  If you can engage them in the kitchen and get them involved in the preparation of the food, you are that much closer to that first taste.

 

More than just a ring full of recipes, each card includes a “Kids Can” text box with fantastic suggestions for helping kids experience all the sensory aspects of cooking.  The suggestions on each card are helpful reminders for parents to get their kids involved and include recommendations like, “Kids can…squeeze the pulp out of the halved avocado into the blender” and “Pack the spinach leaves to measure.”

 

Spinach?  Yes Popeye, spinach.  This isn’t an effort to hide healthy food in a sugary treat; this is a mission to get your kids involved in washing the spinach leaves, pulling off the stems, packing the measuring cup and dumping it in the blender along with the other wholesome ingredients for the “Raspberry Robot” pop.  Hear the blender whir and watch as the leaves disappear along with the avocado, almond butter, raspberries and yogurt.  Don’t be surprised if they announce that they love frozen spinach!

Substitutions for Food Allergies & Texture Works!

 

The result of this blenderized magic is a smooth, velvety frozen treat that offers just the right consistency for little munchbugs learning to tolerate frozen foods.  For example, the Raspberry Robot pop had a texture similar to a traditional fudge bar, easy to bite into and quick to melt in the mouth.  Because my job involves helping children learn to tolerate new textures, I experimented with this recipe a bit.  I substituted frozen cherries for the raspberries and blended just a tad less to keep some extra texture (cherry skins) in the mix.  Another time, because so many of my clients have food allergies, I substituted sunflower seed butter for the almond butter and tasted no difference.  A third time, I used orange juice instead of almond milk and the pop was a bit more like a traditional icy treat, requiring a bit more strength to bite into and providing a more solid chunk in my mouth.  For kids who are taking that next step in jaw strength, the ability to change the recipes in order to change the hardness and texture of the frozen pop is appealing.  Substitutions were always simple and tasted great!

 

Now, some kids have trouble with temperature, especially “frozen” foods.  My favorite therapy technique is to have a narrow glass filled with water to dip the frozen treat.  It makes the outer layer melt just enough to help a child take their first lick.  Kids love to watch the colored swirls in the glass as you twirl the frozen pop in the water and slowly, over time, adjust to the temperature.  

Gentle Eating for Those With Cancer

 

Know what I love best about The BellyFULL Kit?  That it came about quite unexpectedly from a random act of kindness.  Jessica and Stephanie, the two sisters who founded The HopeFULL Company, reached out to help a family friend who was diagnosed with cancer in 2009.  

BellyFull Founders, Jessica and Stephanie

They said “Like many people undergoing chemotherapy treatments, eating was no longer an enjoyable activity for our friend. She struggled to find foods that she could tolerate and that would give her enough calories and nutrition. Knowing we both made homemade baby food for our children, she asked us to make her meals which were small in portion, packed with nutrition and without strong flavors. We were thrilled to help and dove enthusiastically into the project.”

What began as an act of kindness to nurture a dear friend grew to include a new project:  The BellyFULL Kit. Jessica and Stephanie tell us that “this kit was inspired out of a desire to introduce whole foods to our young children in a way that nurtures their curiosity for food, fosters a love of whole foods and desire to eat healthy. The BellyFULL Kit makes it easy to introduce whole foods to young children in an adventurous, playful way. Our frozen BellyFULLs make eating whole foods fun for kids, and preparing them together can create memories which will last a lifetime! BellyFULLs are perfect for finicky little eaters, children with sensory issues, little chefs in the making, parents who made their own baby food, upcoming kid birthdays or mommy-to-be/baby showers!”

 

And to that I shout from my happy belly: “BRAVO Sisters! BRAVO!”

About Melanie

Melanie Potock, MA, CCC-SLP, of www.mymunchbug.com.  Melanie is speech language pathologist who specializes in feeding.  Her work brings her into the homes and schools of her clients, kids, who for various reasons have difficulty with food or with eating. She works with kids and their parents to develop effective strategies that help children become “more adventurous eaters”.  At least 50% of her clients have food allergies or intolerances, and for them, “adventurous eating” takes on a special meaning.  Melanie is also the author of Happy Mealtimes with Happy Kids” and the executive producer of “Dancing in the Kitchen.”

More Posts from Melanie

Tips to Help Your Food Allergic Child Belong During the Holidays

How to Talk Turkey (and Food Allergies) at Thanksgiving

How Can Parents Feel Less Stress with a Food Allergic Child in School?

Tips to Help Your Food Allergic Child "Belong" During the Holidays

Another installment in our series about the social aspect of food allergies, authored by Melanie Potock from www.mymunchbug.com.

Building New TRADTIONs

Thanksgiving is just around the corner.  You’ve reminded the relatives about your child’s food allergies and done all you can to ensure that your child is safe at the yearly family extravaganza.   You’ve worked through the emotions that encompass the holidays, especially when dietary restrictions impact not only your little one, but your extended family as well.

Time to focus on what Thanksgiving is truly about: Gathering together with thankful hearts.  It’s about family, tradition and community.  It’s about gratitude and giving.  And yes, we express our thanks around the table, often with recipes passed down from generation to generation.

How about establishing some new traditions for your little one that don’t focus on food, but on celebrating our time as a family and one that is centered on gratefulness and generosity?  Here a few suggestions to do just that:

Designing Delightful Thanksgiving Tables

 While the adults are preparing the food or perhaps at your house the day before, have a special party for the kids to decorate the table.  Older cousins can assist as the younger kiddos make the centerpiece, place cards, napkin rings or place mats.   This is a time to encourage each generation to get to know each other  a little bit better.  What wonderful conversation starters this will be when everyone sits down! 

Try these centerpieces, place cards, napkin rings or place mats.

A Tisket, a Tasket, Who’s Got the Basket?

Just before dinner, give everyone a small piece of paper.  Each person writes down one funny fact about their lives,  such as “My first job was at an ice cream shop and I'm lactose intolerant!"  or  “My husband called me by the wrong name our entire first date!”  Put them in a small basket, perhaps decorated by your child and while enjoying dinner, pass the basket around the table.  Each person pulls out a piece of paper, reads it, and the table has to guess who wrote it.  Then, that person tells the funny story in detail.  This is the perfect game to video tape – family history straight from the horse’s mouth! Make video copies and give them as holiday gifts in December.  Family holiday shopping - done!

Potato Turkey Heads

You’ve heard of Mr. Potato Head?  Give the kids a variety of shapes and sizes of potatoes, toothpicks, buttons, felt and anything from the bottom of your craft box to create their own potato turkeys, each with his own personality.  Hint: Poke the potatoes with a fork in a few places, microwave the them just slightly the night before and then refrigerate so that little fingers can push toothpicks into the potato a bit easier.  These also make fun place cards (but don't make Uncle Fred's place card look too much like Uncle Fred himself)! 

Find a little inspiration here...

I’m Thankful For…

It’s a lovely touch to share what you are thankful for, but here’s a silly twist to do afterward…go around the table clockwise and the first person must start with the letter A, then B, then C, etc..   Always known for practical jokes, Uncle Rob might say: “I am thankful that Andy’s pet snake hasn’t escaped (yet) from the cage under the table.”  The child on his left might say “I am thankful that Basketball season is coming because I am going to score a gazillion points for my 4th grade team!”  or “I am thankful for Carrots because we dug up the last bunch at our Community Garden to give to the food bank.”

How about a holiday gratitude can?  It keeps us counting our blessing all the way through the end of the year.  

Visit Blissfully Domestic for the how-to's .

Warm Hands, Warm Heart

It’s important to help our children understand that many families don’t have a warm place to gather together on Thanksgiving.  Making blankets  or rice-filled hand-warmers to deliver next week to your local homeless shelter or similar charities is a gracious way of giving thanks for our special day together.  Most craft stores have inexpensive fleece for tied blankets that the entire extended family can construct after dinner.  A few years ago, our family of four made blankets and donated them to Project Linus.  It is their mission “to provide love, a sense of security, warmth and comfort to children who are seriously ill, traumatized, or otherwise in need through the gifts of new, handmade blankets and afghans, lovingly created by volunteer "blanketeers."  Gotta love that!

Is there an adult in the family known for sewing?  Prior to the Thanksgiving gathering, ask them to cut 4 inch by 4 inch pieces of fleece and sew them on three sides as “starter” hand warmers.  During the family festivities, help the kids fill the pockets with rice via a funnel, then  blow in a kiss before whip stitching it shut tight.  For those homeless in our community, a convenience store microwave means not only a hot cup of water for tea, but it is an easy means to heat up these rice-filled hand warmers.  Attach a note,  directions for heating and a tea bag.  Then tell them you wish them well. 

Learn more about how to make rice-filled hand warmers from e-how.com.

It’s Not about the Food, It’s about the Presentation

Okay, it’s also about the food – I’m not fooling anyone here!  But, for your little munchbug with food allergies, participating in the presentation of the food helps them feel valuable and included in the holiday meal.  As a feeding therapist, I love for all the kids to join in on this.  Experiencing the feel and aroma of new foods is one of the first steps to becoming a more adventurous eater.  Here a few tips for getting them involved:

• Handwashing:  This is a golden opportunity to learn about proper hand washing before prepping food!  Soap up and sing Happy Thanksgiving to you (the Happy Birthday song) twice before rinsing hands well.  Dry with a paper towel to prevent your child from accidently being exposed to any food residue that may be on a kitchen towel.  Don’t forget about the soap itself – many contain allergens, especially when the “fancy” ones are put out in the powder room!
• Fresh herbs can decorate any platter or dish.  If you child can’t be exposed directly to the food, have them tear the leaves onto a fresh plate and the hostess can add them herself.  
• Remember to take a minute and admire the presentation.  “Ellie, I love the way you made a nest of greens for the turkey to rest upon! It makes the whole dish look beautiful!”
• Letting the little ones arrange several small allergen-free vegetable trays and then carry them from guest to guest as the adults help themselves is a wonderful exercise in social skills and creates the perfect opportunity for each adult in the family to chat with each child.  So often, kids end up sitting together or playing in another room and miss out on the important feeling of belonging to the extended family. 

Being a Gracious Guest During the Party and Afterward

Demonstrating how thankful we are for the special day together is part of being a gracious guest.  The holiday season is prime time for polishing up on manners, helping with the chores whenever our child can do so safely or offering to entertain the younger children while the adults clean up the  kitchen.  As your child “What is the one thing you would like to offer to do for Grandma today?” and help him follow through.  The very next morning, sit down together and write a thank you note.  Preschoolers can color a picture and kids in elementary school can write a sentence at the bottom of your handwritten note.  It’s all part of the celebration and focusing on what matters most – family. 

Try a handprint turkey card, if you'd like to be creative!

Happy Thanksgiving to you and your sweet families!  I wish you good health andmany joyful memories this holiday season.  _Melanie

More Articles About Thankgiving

Read Aimee's Story:   Second Thoughts About Thanksgiving.

How to Talk Turkey (And Food Allergies) at Thanksgiving.

For more tips on dealing with schools, read:  How to Feel Less Stress With a Food Allergic Child in School.

About Melanie

Melanie Potock, MA, CCC-SLP, of www.mymunchbug.com.  Melanie is speech language pathologist who specializes in feeding.  Her work brings her into the homes and schools of her clients, kids, who for various reasons have difficulty with food or with eating. She works with kids and their parents to develop effective strategies that help children become “more adventurous eaters”.  At least 50% of her clients have food allergies or intolerances, and for them, “adventurous eating” takes on a special meaning.  Melanie is also the author of Happy Mealtimes with Happy Kids” and the executive producer of “Dancing in the Kitchen.”